Episode 327 — There’s POWER in Your Child’s Health Data
Guest: Elizabeth Horn • Date: October 1, 2026
Episode Overview
Elizabeth Horn has spent nearly three decades searching for answers for her daughter Sophia and for families navigating autism. In this conversation, she shares why longitudinal health data combined with emerging AI technology could help parents see patterns that have previously been invisible and better understand what is happening with their individual child
About Elizabeth Horn
Elizabeth Horn is Executive Director of 2M Foundation and a longtime health journey advocate, entrepreneur, innovator, and Silicon Valley marketer. She is Co-Founder and LP of Autism Impact Fund, Co-Founder of ChARM Health, Co-Founder of Brain Foundation, and Producer/Director of IN OUR OWN HANDS: How Patients Are Reinventing Medicine. Her daughter Sophia was diagnosed with autism in 1997, beginning a nearly three-decade journey of searching for better ways to understand each child’s individual biology, health data, and needs.
https://2mfoundation.org/about-us/
You’ll Discover
Why AI Could Help Parents Connect Previously Invisible Dots (9:56)
Why What Works Best Is What Works For Your Individual Child (14:39)
How Count.AI Brings Years Of Health Information Together (19:32)
Why Owning Your Child’s Health Is A Critical Paradigm Shift (26:36)
What Could Be Possible Within Five Years (40:09)
Full Transcript
Elizabeth Horn 0:00
You're not going to believe what's going to happen in the next five years with AI. It's unimaginable how things are going to change, and for a lot of people, that's scary. But for those of us who've been looking at trying to untangle the hairball that is autism for decades, it's our only hope.
Len Arcuri 0:16
If you're a parent of a child with autism, you are being called to rise with love, courage, and clarity. This journey isn't easy, and most parents aren't equipped. But you can be. This podcast is your invitation to rise higher, because how you navigate matters. I'm Len, and this is Autism Parenting Secrets, where you become the parent your child needs now. Hello and welcome to Autism Parenting Secrets. My guest today has been nearly three decades asking some of the biggest questions in autism: What is actually happening with our kids, and how can we know if what we're doing is actually helping? Elizabeth Horan is a mom to her daughter Sophia, who was diagnosed with autism in 1997, and from the beginning, Elizabeth was unwilling to accept that there was nothing more to understand or nothing more that could be done to help her daughter, and her search for answers led her to produce the documentaries Finding the Words and In Our Own Hands, and eventually to become one of the most connected conveners of clinicians, scientists, technologists, investors, and families committed to finding better answers and improving outcomes for our kids. Today, Elizabeth is executive director of the 2m Foundation and is helping to develop Count AI. It's an ambitious effort to use longitudinal health data and artificial intelligence to help parents understand what's happening with their individual child. And Elizabeth knows that we're approaching an inflection point. Instead of relying on snapshots and fragmented information and generalized assumptions of autism, technology will finally show us how to connect the dots that we've never been able to connect before. So this conversation is really about fundamentally changing how parents understand and navigate their child's health. The secret this week is there's power in your child's health data. Elizabeth, welcome to the show.
Elizabeth Horn 2:27
Len, thank you so much for having me. I really appreciate that glowing introduction, and I am looking forward to pursuing some of the thinking that I think you and I share about why tech is an important piece of answering unanswered questions about autism.
Len Arcuri 2:44
It really is, and I think tech kind of has a bad name in the sense that you know many of the episodes we've had here has talked about how tech is very dysregulating. You know, from our for our kids, it's something that we want to try to minimize. And from a parent's perspective, you know, it's easy to kind of look at tech as kind of negative, but I think what you're sharing and where your focus is that it really is unbelievably going to be what enables so much more for our for our families. So I'll let you, in your own words, talk about that because I'm convinced now, and I guess probably would be useful for you to start a little bit with, you know, perhaps your story going back, you know, 28 years or so with your daughter Sophia. So, talk to me a little bit about what happened for you personally that started you questioning and really searching for more.
Elizabeth Horn 3:37
So, is is all parent all parents have a story about where the journey began, I think for me the journey actually began before my daughter was diagnosed, and I am here in Silicon Valley, which is a relevant piece of this tale that I'm about to tell, because I've been lucky enough at a couple of times in my life as a filmmaker and marketing person here in the valley, to meet up with innovative thinkers around tech, and whenever I talk to large groups of people, I always retell the amazing story of meeting with the Macintosh team before the Mac came out, and meeting with Steve Jobs and Steve Wozniak, and this is late 1990s, early or actually late 1980s, early 1990s, and they were telling me that someday everyone would have a personal computer. And Steve even talked about agents that would do your bidding for you on your computer. And I was so excited and such a believer. And I went back to my office maid, who was a graphic designer, and I said, "This is amazing. Someday you're going to do all of your graphic design on a computer. You're not going to need a drafting table, and you're not going to need to run type. And she proceeded to tell me the 50 reasons why that would never happen. I did the same with my friend, who was a film editor. And he was cutting film in Berkeley, and had big bins of celluloid and women in white gloves cutting the celluloid together. And I said, Robert, someday you're going to cut everything on a computer. You won't have to have all these people. It's going to be so much faster, so much better. And he proceeded to tell me the 50 reasons why that would absolutely never happen for film editing, and everybody knows the way those stories went. And then I had an opportunity to be part of a big think tank that Paul Allen, the co-founder of Microsoft, pulled together in Palo Alto in the early '90s, where he pulled together Sony and GE and Apple, and we were all sitting around a huge table, and the question that we were pondering is, what do you think people will do with the World Wide Web? And we're all sitting there in our old paradigm, thinking, thinking, would people buy things? Would we have to create animated malls with little avatars to walk into the stores? And so we're just going off deeply in the wrong direction. And on the second day of conversations, a young guy came in and said, "I'm just going to sell books, and that was Jeff Jeff Bezos teaching us that you start with the things that are easy and the things that are at hand. So when my daughter was diagnosed at two, right on time, at Stanford by a group of different doctors with a disorder which then was considered lifelong and incurable, and if you read the books back then, pretty dismal, and the depths of despair into which I fell, people understand, so I don't have to go into that. But what I realized early on was there were things going on with her every day that influenced how her autism presented itself, and that these things could be captured. And I started thinking about a dashboard a long time ago as a way because dashboards were becoming popular in enterprise businesses. So you could look at your business front end to back end, know which region was doing the best. I said to my husband, who ran a company that did those kinds of things, I said, "This is what I want for sophia's health. I want to see what's going on every day, so I know not only what's happening with her, but have a data-driven reason to do the things that I do, and have an opportunity to see if the things that I do actually change the metrics that I'm capturing in the dashboard. So I think I wrote a white paper about that 15 or 16 years ago. The idea was great, and when we started the foundation, it was, and this was the Compass Group, is what we called it back in 2014.
Elizabeth Horn 7:53
Our mission was to build an open source, multidimensional data set for autism, and we had to say in the cloud back then, with the idea that we would start to pull together all of the kinds of data which we could now access ourselves, thanks to the introduction of wearables and direct-to-consumer testing. This was when the Nike Fuel Band just came out. I don't know if any listeners who remember the Nike Fuel Band, but also 23andMe, so you could start to get genomics at a relatively reasonable price. It's much more reasonable now, but the theory behind those first meetings, and and I brought together people who became my close friends, the co-founder of 23andMe, Martha Herbert from Harvard, who was a open-minded, broad-thinking neurologist, also a man who recently passed away, unfortunately, who had the first AI company in Silicon Valley named Alan Rappaport, another complex chronic disease doc named Andy Kogelnick was his name, and then my co-founder of Medical Mind and Brain Foundation, Pramila Srinivas, and we had a an EHR and a patient portal called Charm Tracker and Charm Health. So we all got together in my living room and said, "Well, let's just start put together a kit and start having people collect the stuff on their own, so we're still kind of there now, all these years later. What's changed is what you just mentioned. the The hero in the story for us families is going to turn out to be agentic AI, because agentic AI. When I first heard Andy Andrewings describing it at a Sutter Health conference, when he said it's iterative and reflexive. Unlike generative AI, it actually learns and remembers. I thought this is what we parents have been waiting for-something like us, but it's superhuman-that they. 100 times faster, never sleeps, and can constantly be looking out at all of the relevant kinds of information that pertain to our daughter's, our family's unique children's unique health signature, that can then bring it back to us as insights that are actionable and trackable.
Len Arcuri 10:20
Yep. No, it's it's exciting, and I'm nodding as you're talking because I go back to my first Dan conference, and that probably goes back to like 2009, and I just remember, and that stands for Defeat Autism Now. What's an early biomedical conference? Now, pretty much the Maps organization is continuing with with what Dan started, but when I was sitting there as a dad, I was kind of one of the few dads there. My my wife made sure I was on the plane and encouraged me to go, but I was sitting there, and those conferences are very overwhelming. There's especially first time you're hearing so many different things, and I'm sharing the story because all I kept doing when I was sitting there listening to the lecture, the people who were speaking, the scientists, the doctors, phenomenal. But I just kept wishing to myself two things. One was, can't I just get all these people who are speaking and get them all in a room, present? I put my son in the middle, have them get all of their eyes and ears on my son, so that after a couple hours I could walk away with the right strategy. Here's exactly what to do. Here's where to focus. And I was like, how much would I have paid for that if I could have had that? Of course, it was unrealistic back then, but literally, count AI is basically that only now doing what back then was impossible. Now we actually have the technological ability to do that. So that that was the first thing that popped in my head. The second thing I was wishing for, by the way, is can't somebody help me get better equipped to navigate and implement and make decisions? Because I didn't want to fail my son, and so that second problem is what I've devoted my life to focusing on to help parents with how they take information and actually put it into action. Because there's a lot that can get in the way. So with that analogy, and I'm sure you went to some of those early Dan conferences. It's it's it's that pretty much what you were thinking back then.
Elizabeth Horn 12:20
Yeah, and and I was lucky enough to one of the first people I spoke with was Bernie Remland, who founded the Defeat Autism Now movement, and and because I made my first film pretty early, the Finding the Words film about kids who'd recovered,
Len Arcuri 12:35
but that documentary is so incredibly still relevant. It's crazy. I
Elizabeth Horn 12:39
know, amazing, isn't it? Yeah, but it that gave me a frame, and it also gave me a little bit of emotional distance to tell the stories of seven families who had done, tried to do what you just described-that is, go to a whole lot of different doctors, come up with a strategy, and do their best to figure out what they needed to heal in their children, which is just that in and of itself. Because Bernie always said, you know, it's treatable and biomedical, and that was heresy back then because it was hardwired and genetic, and there was nothing you could do about autism really. So Bernie was a revolutionary for sure. But the idea that parents could also talk with each other was a big part of the Dan conference because we all gathered there to listen to all the clinicians and researchers, but also to have the clinicians and researchers listen listen to us. And and I think the idea of agentic AI and something they call digital twins. So right now we're talking to an amazing doctor in the autism space, Anju Uzman, about creating an agent of her practice because she's retiring. So she and her patient base have agreed to donate their data from 40 years of of effort, and then I've also been we've also been approached by other doctors who who seem willing to do that as well. So, if you imagine these big pools of data out there that parents can now access now anonymized, de-identified, so that means the privacy of the families is being protected as we do this, but also have the wisdom and experience of the doctors who treated all of those patients, all as data sets that you could access when you're putting together that roadmap for your own child, and then share share your child's journey once you establish the roadmap with the interventions, and when you do them, and time stamped, and checking all of the correlatable metrics, biological metrics that correspond to that roadmap, and de-identify that, anonymize that, and share that with a million others. Families. What we're going to find when we look at that kind of data is the patterns that right now we think are there, but we don't know that they're there, and we can't prove that they're there. So autism is always being called heterogeneous, but it's supremely heterogeneous, and there's that other cliched phrase: "When you've seen one kid with autism, you've seen one kid with autism. Well, the truth of the matter around healing is, what works best is what works for your child. But first, you have to understand what needs to be done to help your child heal, and we as humans are not static creatures. We're dynamic organisms, particularly a child moving through time developmentally. And what happens with most of our kids, and again, your listeners will probably be acutely familiar with this. They start out with one diagnosis, and then they add another, and then they add another. Whether it's GI disease, seizure disorder, early Parkinson's, I'm hearing about now, and some older boys, ADHD, oppositional-you name it. Right? We all end up with a child who has a host of issues, but it all boils down to the essential what they call omics. So, what are the biological metrics that create the signature that is your child? How can you get to those easily and cheaply? And then, how can you create the roadmap based on those metrics and based on the wisdom of all of the other families that have come before you, who may have similar journeys, and put together a plan for your child and track to see that it's effective and that it's changing the outcome for your child right now, because it's such an ABA-driven treatment world still for autism, and when I got into this, ABA was considered quackery. Believe it or not, so things do change, folks, and we can change things. It should be defined. Autism should be defined biologically, not behaviorally, because it's the biology that's actually driving the behavior.
Elizabeth Horn 17:29
So, if we can transform the autism space to one that is biologically driven and is data driven, where your child has a unique path that's based on their omics, we have a chance not only to answer the big questions you have about your kid, improve the outcomes for your kid, but also potentially improve the outcomes for a whole host of other families, and maybe, God willing, prevent this from happening to the children that are just being born.
Len Arcuri 18:02
Well, there's so much that you just shared that that is so so powerful and so true. And the concept, though, of the cat like that's the categorization, right? Like ultimately, yes, every child's unique, but there are categories, and they have nothing to do with symptoms, right? They're all about the drivers, the underlying, and that's where I focus on root cause, root cause, root cause, which is I know you're saying the same thing with the biological underpinning. So there's this categorization that's helpful in terms of knowing where to focus, the concept of measurement, knowing where what's going on with all the omics that you talked about. Right? It may not. It may be the microbiome. It may be metabolomics. It may be the genomics piece of it. So yeah, there's so much in what you're saying that is that is incredibly important. The measurements key, categorizing to know where to focus, and and I know we talked before this about even going back to the Dan days with Dr. Sidney Baker, he had this concept of Autism 360 to do something similar. So it's I think the opportunity's been there, and people like you and I have been wanting for something like this, but only now is it actually really feasible. And and so to be able to you know have those data sets, and I'm so excited to hear that Dr. Anju is somebody who you're getting data from him. She's phenomenal, and and yeah, I think the right data, and if you can get enough of it, will give you information. You know, maybe maybe not tell you definitively here's what's going on, but it can definitely help you with that precision that I think every parent is looking for on how to take the limited time, energy, and money that we have, and how can we channel it in a way that's most likely to move the needle for our kids?
Elizabeth Horn 19:51
Absolutely, and and yes, Sid Baker and I talked long ago about about his idea, and we were just waiting for the right tech. And I think that everybody realizes that that we have that opportunity now to to figure out not only to figure out what's going on with our child, but to do it in so with something that we already have in our pockets or in our purse, our tele our phone, the cell phone's already out there. We don't to build it. the The network of people is already out there, so we're we're using existing infrastructure to drive through ideas that we've all had forever to make it possible for families to immediately get a benefit as they're collecting information. For example, Count AI, you can put all of your historical health data into your phone, basically. We also have a web laptop version, a web a desktop version of Count AI. Now, so we've gotten all 20 years of my daughter's labs. They're all there. We've got all of the IEP information. We've got all of the information that we've been collecting about her fitness over all these years, and we all know that we have closets full of binders. You know, we've always talked about our closets full of binders. Those can disappear. And the great thing about Count AI is you can ask him where that aluminum detoxing test that you did with doctors' data back in 2002 is, and within minutes, not even minute seconds, he will bring up that that lab and tell you what the reference ranges were and tell you how that compares to labs that you did later. When Anju Uzwin saw that when she was here recently, she was astonished, and it's compressing the amount of time, which is so huge, particularly for the clinical and the researcher part of our ecosystem, but also for us because we no longer have to try to remember where we put all of those things about our our kid, and then if you attach an Apple Watch to that, which we have done to capture wearable data around things like balance and heart rate variability, and we've been able to do with Count AI. We've been able to predict my daughter's seizures, which is a huge thing, and I mean truly predict. We have actually predicted seizures a month in advance to within two minutes of when they will occur, because we were looking and collecting the data around the triggering events and the antecedents that we saw happen before her her seizures. So we always say that the more you put into Count AI, the more you capture. And most of this is just either taking a picture or talking to Count AI. You don't types. Not a lot of surveys. None of that kind of stuff. The more you're going to get out of it, and then if you share that again with 1000s of families who have kids with seizures, we're going to start to see that there are certain things that are triggering for these kids that could be eliminated to try to minimize the number of seizures, my daughter's never been on a seizure med for a whole bunch of different reasons. So, similarly with other episodic events like GI disease, Crohn's disease, having flares, all of these things happen with a constellation of precursors. We just never had an easy way to track them before, so the I think the most powerful thing about this idea, because county eye is still a proof of concept. It's not a product. It's will always be free to families. I have no intention of selling this to anyone. I think that families have paid enough, and that we need to give families things that can help them to help their kids right now, and and hopefully the ecosystem of product and services that families need to do the testing will also be given to families for free. We're trying to negotiate those kinds of deals and find people to help pay for those kinds of things that don't involve the families having to pay out of pocket for things like this.
Elizabeth Horn 24:04
So, but the power in this is that it puts the responsibility in a way back on the families and the community, because only we have the kind of data that we need to actually solve the problem, it's not in legacy data sets at UCLA or MIT or Harvard or Spark with the Simons Foundation. But the power in Count AI is that all of us can help to be part of the solution if we agree that we're going to watch what's going on with our kids. We're going to capture that data on what's happening with our kids, and understanding that privacy is of the utmost importance. Find a way to share that into a gigantic data lake that we can then run algorithms, you know, run programs against to look for, as you said, those categories. Because if your child is die. Knows with autism, they're going to say ABA speech therapy. We we all know this, and you can go along for years and get those services. And as many of us discover, after doing it religiously for days, it doesn't really do anything if the root causes have not been elucidated, and if the root causes haven't been dealt with, then you're not going to end up at the outcome that we all want, which is independence and health for our kids. So now the ball is in our court as the what we call the Count AI community to step up, collect the data, share the data, donate the data for the good of all-not only our kid, but all of the families who have kids who need the kind of help that we also need ourselves.
Len Arcuri 25:50
Absolutely, no. The a lot of themes that you touched on, and I think the the concept of getting all the data right. There's going to be a lot of noise in there, but by having enough data, you'll be able to pick up those signals that are relevant, and again, that that help inform what to do. And I think even taking a step back, there's a paradigm shift. I think for any parent to just really step into that the responsibility here for the data and for managing this as ours as opposed to that's what my doctor is going to do.
Elizabeth Horn 26:24
I you couldn't be more right about this. I think that's that's the big shift. That's the behavioral change that I'm hoping we will see if we gift the community with Count AI. Is that people understand that the doctor, even the the best ones, will agree they cannot fix fix you if you don't agree to own your child's health. And if we make it easy for you to do that, and again, one of the other things we've said about Can AI from the beginning, or certainly I've said to the developers, is parents and families and care teams have to get something back for every single thing they put in, and this comes from someone who's filled out, as I said, dozens of surveys, and and nothing ever came of all the time I spent doing doing that. So everything that you put in, you need to get something back, and the more of us that put things in, the more we all get back. That's the that's the interesting thing about this this approach that we're taking.
Len Arcuri 27:32
There's so many different places I'd like to take this conversation, but I guess I just still want to kind of frame everything you're talking about is more significant, I think, than people may realize. And the reason I'm saying that is that I'm very skeptical whenever anything new comes up in terms of you know, there's lots of, especially software and and oh, this app's going to help you with the decision making because nobody's more of an expert on your child than you, and there's a lot of maybe well-intentioned apps and tools that are out there that might you know look to to inform. But when you really look under the hood of a lot of them, okay, it's it's really not that helpful. Probably not worth the time and effort. And and there's been tools like this around for quite a while. But again, where you are is not okay. Here's a software tool that's going to help you. It's like you're thinking many years ahead in terms of what was coming. And so, you know, for people who are wondering, okay, what does this mean? I heard you talk in another conversation about how right now the challenge a lot of parents have is, okay, I receive this diagnosis. Okay, I got to get in line for services. Got to line up ABA, speech therapy, occupational therapy. That whole, you know, what I call the autism hamster wheel. Which you're right. It's if you only stay there, you're never going to really get to the root of anything. Not to say any of those things are bad. It's just, it's just that they're not going to move the needle necessarily. And so that whole visual that parents may have with this is what I'm in for. Can you talk a little bit about how that is not going to be how things work very soon, right? It's going to change so much more rapidly than we think.
Elizabeth Horn 29:14
Yeah, and and I have friends because again we're in Silicon Valley who work at Anthropic and OpenAI, and and they're they're sending me these little teases every now and then. You're not going to believe what's going to happen in the next five years with AI. It's unimaginable how things are going to change. And for a lot of people, that's scary. But for those of us who've been looking at trying to untangle the hairball that is autism for decades, it's our only hope, honestly. It's the only hope of figuring out the main question that one of our one of my longtime friends and colleagues asks when he's at meetings is, "What happened? What happened to my kid? You know, we should be able to answer that question. It's absurd. We can't answer that question. The other big question that comes up for those of us who have non-speaking or minimally verbal kids is, why can't my kid talk? You know, what what is why isn't that a big question for everyone? It's lovely that we have spelling and spelling boards and augmentative communication, but why can't they speak? There's got to be some way we can untangle that to help these kids actually communicate on their own. So the all the apps and things that are out there, and I've met many of these people, and they're all extraordinarily well intentioned, and they have something that's going to have a run for a while. But we're talking about the mothership. We're talking about the overarching way to think about health. Period. So and the people that we have as part of our group, I've spent a long time finding the most forward-thinking thought leaders in the AI space, in the wearable space, in the sensor space. Obviously, we're here in Silicon Valley, so we talk to the people who are selling you the hardware. We talk to the people who are selling you the software, and everybody understands right now. And this again is where parents should feel empowered rather than hopeless. That the data that we need, as your the title of the podcast said, your child is generating that data every single minute of every single day, but it's not in your EHR record. It's nowhere to be found in anything that any hospital or institution currently has or has been collecting, because it wasn't collectible until now. And the reason that we don't have the answers for what's going on with our kids is because we that data has been invisible to us. Well, now we'll be visible, and we own it. And that asset is the most valuable thing in healthcare. That daily dynamic real world patient, we call it people first information, is much more valuable than anything else out there, and because trust is a big issue with families as it should be, it also again puts the ball back in our court. If we want to trust that this data will be carefully watched, cared for, protected. We have to own that data, so we created a tool that allows families to do that. And the development of the software tool and software development is also very expensive because it's never ending. But that software development path will be determined by the people who are using the software, not by a company that's trying to build something and forcing you to buy it so they can make their numbers. Our motivation is absolutely how can we help the families and how can we help our children, and the people that are supporting this effort understand that that's where we're coming from. This isn't about making a whole lot of money off anybody ever. It's about actually finally solving the problem with technology. That's the happy side of technology. I mean, who'd have thought that we'd be making movies on our phones?
Len Arcuri 33:19
Right.
Elizabeth Horn 33:20
Who'd have thought that we're sitting here having this conversation? No one could imagine 20 years ago that all these things would be possible. So with healthcare, what I always tell families is we are going to decide what the future will be because we're going to build it together for our kids.
Len Arcuri 33:36
Yes, and I think it's amazing that you've assembled the people who share that mission because it's very easy to fall into a monetization opportunity, right? In terms of getting people to yeah,
Elizabeth Horn 33:48
we'd never get there. You know this better than anybody. We would never get. I mean, people have tried, right? So, so honestly, to your listeners, and it's been a long road. And my daughter still has a lot of issues. We're not giving up. We're not going to stop until we answer these questions. And on the tech side, in the nether world of tech, where they're doing brain-computer interface work and neural augmentation, and all of these things that are you're constantly hearing about that are coming out. We look at all those things. That's what 2M because we're right in the heart of of Silicon Valley. We look and consider everything and whether or not it could help any child and which child it would help, and how it would help, and what the debt, what the side effects are. Rather than being a pharma-only driven view, our view is completely open. You know, what are the whether it's meditation or living by the ocean or, you know, watching the CO two level in your classroom, whatever it is, we're looking. To see what it is for your kid that influences their daily health and influences their lifespan, a lifespan view in the future for that for that child. I don't think we should set limits on what our kids are going to be able to do. That's like they say, old paradigm thinking. You know, I just I think we don't know, but a lot of it is in our own hands. If you excuse my allusion to our film of the same name, it really is something that we we have control of right now. And what we're trying to do is make it as easy as possible for families to gain the benefit from the technology that we've created,
Len Arcuri 35:45
that's wonderful. And but it's so true; it is in our hands. And again, the data is the key. You're talking about leveraging technology, wearables, and the like, and that biometric data. How important it is! In addition to parents' observations, what are they seeing? Right? What labs are you running, and I have done a little beta testing of the Count AI tool, and I can attest to the fact that it's very easy to share what you have in the for. And I'm so glad, by the way, I have the closet of binders because it would have been easy to throw that stuff away, but it's now I know it can actually be part of that data set, and there may be very well be something very significant. So, so the opportunity here is looking to deliver something that's easy for parents to use, as you said, no price barrier for them using it. The confidential confidentiality of the data, I know, is something that you take seriously as well, so yeah, here it's it's hard to get your head around it. But if parents who are listening are intrigued and want to learn more, I know this is not readily available. What would you suggest that they can do to learn more and to to get ready? Because I'd ask you when will this be readily available, and I know your answer is I have no idea, but you might have a you might have a sense.
Elizabeth Horn 37:04
Well, I do have a sense, and it is in beta, and we are always looking for beta testers. So, just two days ago, we revamped the Count AI project website. You can go there, and I'll send you the link so you can put it up for families or send it to families. And absolutely welcome as many beta testers as we can get. The more, the better is the is the trick with this. As you were saying, Len, the more people who start looking and sharing, the faster we're going to get to the solutions for our children. So it's so important that we don't have to wait for the research coming out of whatever institution just got a grant two months ago or whatever to give us the answers. I I I was there for many many years waiting for the answers to come from them, when really the answers are going to come from
Len Arcuri 37:59
us. No doubt, for parents who are listening, is there any limitation in terms of like in terms of beta testers? Whether they have a younger child newly diagnosed, whether they have an adult, doesn't make a difference, right? Testers are testers.
Elizabeth Horn 38:14
Yeah, testers are testers on the site. One of the things that we ask is, but again, we're we're pretty we're pretty flexible, but we ask that you have a child with an autism diagnosis and maybe one other condition that's episodic. So, could be meltdowns, could be aggression, could be catatonic episodes, or some of the things people are tracking now in the older kids. Certainly, seizures, GI Problems and and yeah, just a list of a few soft requirements if you want to be a beta tester. But as I said, we're we're pretty flexible. We just want people to become rabid users like like we are, so we can all figure out what we need to do to help make it software the software that works best for every family,
Len Arcuri 39:01
wonderful. Yeah, I will include in the show notes the links where people can follow through and pursue exploring this tool. And again, it's a, it is super exciting. And again, it's amazing how fast things are moving. And I look forward to having you on again down the road because there's a lot of different aspects of this that I think are worth worth going deeper on. But I guess the the question I'll I'll ask you to to end our conversation is if you really did look forward, let's say 10 years or even five years, because because I think nobody's in a better position to kind of guess where this is going than you. What do you believe will be possible if you can kind of articulate where you think that end state might be, however soon it comes.
Elizabeth Horn 39:41
I believe in five years we will we will have redefined autism. We won't be using that word in the same way anymore. I think that we'll certainly have protocols for families who already have a child with autism and are getting ready to have a sibling that will enable them to be much less likely to have. Kid with any sorts of issues, there are already practices now that are doing that. I also think that we will have agents of all the wise, amazing clinicians who've spent their entire careers collecting data and looking across kids with these. And there, you know, Maps has a couple of 100. We need 1000s and 1000s of clinicians. There'll never be enough great clinicians. So again, the community has to step up with ways to better quantify what's going on with each of our children, because then agentic AI will help the clinicians to design paths and come in to be sort of concierge and each of us, as as we move forward, I also think that just a better understanding of the things in the exposome. So those are all the things we interface with every day that are causing these numbers to rise. Will will be revealed to the whole population. So we're going to have a better sense of the things in food, the things in medicines, the things in EMF and Wi-Fi that may trigger you if you have a certain kind of vulnerability, which again we'll be able to identify early on. I think babies should be quantified. I always talk about babies, newborns being born with instructions. You know, my child has methylation weaknesses; should not get this. That absolutely, in five years' time, that kind of thing is going to be much more common than it is right now. So, giving more power back to families to make sure their their children, if they're not healthy, can get healthy, and if they are healthy, they can stay healthy. That'll be the way that the healthcare. I think that's going to be the only way, honestly, that healthcare is going to survive in in America with the way the rates are going. We've come to that, as you said, inflection point where we have to take the power back.
Len Arcuri 42:00
I think that's a wonderful message to end our conversation with. And Elizabeth, I really appreciate you taking the time. Wishing you nothing but success with all your efforts, including Count AI. And again, I encourage anyone listening check it out. Look at the show notes. And this is definitely a tool. It would be well worth your time to beta test, as Elizabeth said, whatever you put into it, you will get more than that back, and it's just really exciting to see where everything's going. So thank you again, Elizabeth. Many thanks, Len. Look forward to having more Count AI community members. Fantastic. Your child needs you running on all cylinders now, and the fastest way to rise is with personalized one-on-one support. Get started today. Go to elevatehowyounavigate.com
